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The Polyposis Registry supports people who have a polyposis condition, and their relatives.

Syndromes

Find information on the numerous syndromes associated with Polyposis.

Resources

Browse our documents and information on the research we have been doing.

"I have been as lucky as a National Lottery big money winner. I have had the country’s best look after me every step of the way. Excitingly - the best are getting better all the time"

Peter Grainger, Polyposis patient
Read Peter's Story

One of the longest running research projects in the world

The Polyposis Registry was founded in 1924 when the pathologist at St Mark’s, Dr Cuthbert Dukes, began to collect data with his young assistant, the then 17 year old Dick Bussey (later Dr Bussey, pictured). By the 1940s enough information had been recorded to establish that the condition, polyposis, was inherited in a dominant fashion and what had started as a register of patients with multiple polyps and a family history of bowel cancer became the first Polyposis Registry in the world.

More about our history