Donate now

COVID-19 UPDATE see our news page

Syndromes

Find information on the numerous syndromes associated with Polyposis.

Resources

Find out more about what we do with our patient information documents and videos.

"We have been very impressed with the kindness, care and sympathy shown by all the staff, doctors, nurses and administrators alike"

Terry Maggs, grandfather of polyposis patient
Read Terry's Story

One of the longest running research projects in the world

The Polyposis Registry was founded in 1924 when the pathologist at St Mark’s, Dr Cuthbert Dukes, began to collect data with his young assistant, the then 17 year old Dick Bussey (later Dr Bussey, pictured). By the 1940s enough information had been recorded to establish that the condition, polyposis, was inherited in a dominant fashion and what had started as a register of patients with multiple polyps and a family history of bowel cancer became the first Polyposis Registry in the world.

More about our history